As the parent of a child with disabilities or complex medical issues, there is always something.
A follow-up to schedule for one of the dozens of specialists that follow our child.
A meeting to arrange with our child’s IEP team.
Related services like physical therapy, occupational therapy, speech therapy, and vision services to keep track of in school.
Additional therapy appointments to attend after school.
Countless doctors to consult with.
Medical records to obtain and organize.
Years of medical history to keep straight in our heads.
But every once in a while things can seem to settle a bit. We may feel like we’ve hit a stride and are keeping on top of all the things. We can finally take a little breath.
And then… nope. It can feel like a big fat “just kidding!” is thrown our way, because there is always something.
A new diagnosis added to our plate.
A referral to a new medical department.
A recommendation for an additional intervention service.
Another evaluation due.
But we are used to this. This is our job. A job that was placed into our hands the minute our amazing child came into this world. And although this job is challenging and filled with uncertainty and often makes us doubt ourselves, we do it. And we do it the best way we know how.
We are the parents of children with special needs. We are dedicated to doing the right thing for our kids. We will advocate our hearts out for them.
We are strong, and we are strong because we have no other choice.
Because there is always something.