Neither did I until I saw the note from my daughter’s Orientation and Mobility Teacher!
About one year ago, Evalyn was introduced to the long white cane in school. As you may be aware, she has Cortical Visual Impairment (CVI) which is a brain-based visual impairment. She is not blind. Her eyes are healthy and normal. She can see, but her brain has difficulty interpreting the information it receives from her eyes.
If you follow my writing, you are well aware of my passion for advocating for kids with disabilities and special needs. I want to spread the message that all kids with differences should have the same opportunities as their peers, and should be viewed as equal, not less. That is why when my writer friend, Jamie Sumner, announced that she has a new middle grade novel coming out starring a young girl with cerebral palsy, I was ecstatic! I cannot wait to get my hands on a copy of this ground-breaking book!
I want to tell you something about this smart and sassy girl right here.
I’ve talked about various challenges that Evalyn faces each day, including her congenital heart defects, and motor skill and speech delays. I haven’t really talked about specific diagnoses because those labels have not been integral to the messages I have shared. And in the big picture of who my girl is as a person, they do not matter.
But, today I want to share with you one of her conditions that impacts Evalyn in every way, every single day of her life – Cortical Visual Impairment.