Disability Representation Matters: Interview With Jamie Sumner, Author

Photo: Jamie Sumner

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Disability representation matters, and that is why I am so excited to share a new book with you.

If you follow my writing, you are well aware of my passion for advocating for kids with disabilities and special needs. I want to spread the message that all kids with differences should have the same opportunities as their peers, and should be viewed as equal, not less. That is why when my writer friend, Jamie Sumner, announced that she has a new middle grade novel coming out starring a young girl with cerebral palsy, I was ecstatic! I cannot wait to get my hands on a copy of this ground-breaking book!

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What Cortical Visual Impairment Means For My Daughter

I want to tell you something about this smart and sassy girl right here. 

I’ve talked about various challenges that Evalyn faces each day, including her congenital heart defects, and motor skill and speech delays. I haven’t really talked about specific diagnoses because those labels have not been integral to the messages I have shared. And in the big picture of who my girl is as a person, they do not matter. 

But, today I want to share with you one of her conditions that impacts Evalyn in every way, every single day of her life – Cortical Visual Impairment. 

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Special Needs Parents: Keep on Believing

This little girl amazes me.

At one time, not too many years ago, I didn’t know if she would ever walk.

When your child is nearing their third birthday and hasn’t yet taken their first steps, fears like this come to mind. This is a huge part of being a special needs parent, you know. The fears. The questions. The what-ifs. They are things my fellow special needs parents and I know all too well.

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