Dear parents of children with special needs,
Please remember that you know your child best. Never let anyone make you doubt yourself.
I know there are so many people telling you about your child’s weaknesses and what they need and don’t need. Most are well-meaning. But you are the only one who truly knows what is right for your child.
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I am a romantic.
I love LOVE.
I secretly adore writing poetry, and not-so-secretly adore daydreaming about happy endings and the feeling of butterflies in my stomach.
But I hate Valentine’s Day.
Detest it.
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As the parent of a child with disabilities or complex medical issues, there is always something.
A follow-up to schedule for one of the dozens of specialists that follow our child.
A meeting to arrange with our child’s IEP team.
Related services like physical therapy, occupational therapy, speech therapy, and vision services to keep track of in school.
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Here’s the thing about putting yourself out there online.
I am a painfully shy, extremely private, introverted person. And yet, I choose to pour my heart out into words for all the eyes on the interwebs to see.
Writing is my love, my art, my way to express the intense emotions I experience as a mother and a woman. I share my story so others know they aren’t alone. And to be honest, it helps me know that, too.
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I often joke about how tired I am.
About how I love my naps.
About how the dark under-eye circles are just my face now.
It’s funny because it’s true, and I know many can relate to those sentiments.
What I don’t share is the guilt I feel about being so freaking exhausted all the time.
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