I usually write about my children on this page.
Things they do that make me proud. Moments shared with them that inspire me. Experiences that fuel my admiration for them that I want to share with the world.
Today I am writing about these things but in relation to someone else – my sister-in-law, Anne.
This morning, after my daughter had gone to school, I prepared breakfast for my toddler. As he happily played with his dinosaur toys at the dining room table, I microwaved a frozen pancake and poured some syrup on top. I brought the plate over to him and began cutting up the pancake into bite size pieces.
“Good job, Mommy!” he delightfully exclaimed.
Today is Rare Disease Day.
Imagine taking your child to a new doctor for the first time. You sit in the exam room and give a detailed medical history for their chart. You mention the rare genetic syndrome that your child was diagnosed with in infancy. A concerned look washes over the doctor’s face. “Can you spell that, please?” they ask.
This picture is from Valentine’s Day 2011. It was the day before my daughter’s first open heart surgery. She was 7 weeks old.
I remember thinking how symbolic it was to have her little heart being repaired so close to the holiday when we celebrate hearts and love.
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Facebook is my happy place.
Recently I have heard a lot backlash regarding moms whose social media posts are always showcasing the positive. I’ve read blog posts addressing this to the effect of, “I know you are lying. No one is that happy. Just be real.”
